Adolescents and young adults (AYA) with cancer have often been described as a medically underserved population, falling through the gap between pediatric and adult oncology. As AYAs transition from childhood or adulthood the normal concerns they may have – development of body image, dating, separating from parents, career and education decisions – are compounded when they are faced with cancer. AYA cancer patients may face issues such as infertility, loss of employment/breaks in education due to treatment, increased dependence on parents, and other health concerns that may be exceptionally difficult for this group to cope with.
Source: Zebrack B, Hamilton R, Smith A. Psychosocial Outcomes and Service Use Among Young Adults With Cancer. Semin Oncol. 2009; 36:468-477.
Identifying and Addressing the Needs of Adolescents and Young Adults With Cancer: Summary of an Institute of Medicine Workshop.
Oncologist. 2015 Jan 7;
Authors: Nass SJ, Beaupin LK, Demark-Wahnefried W, Fasciano K, Ganz PA, Hayes-Lattin B, Hudson MM, Nevidjon B...
Adolescent urologic oncology: current issues and future directions.
Urol Oncol. 2014 Feb;32(2):59-69
Authors: Cost NG, Cost CR, Geller JI, Defoor WR
Recent Surveillance Epidemiology and End Results (SEER) data indicate that the annual cancer...
Barriers to the Use of Psychosocial Support Services Among Adolescent and Young Adult Survivors of Pediatric Cancer.
J Adolesc Young Adult Oncol. 2014 Sep 1;3(3):112-116
Authors: Gardner MH, Barnes MJ, Bopanna S, Davis CS, Cotton PB, Heron BL, Henninger A, Alva E, Gleason MW, Whelan KF, Madan-Swain A
Opioid Misuse Behaviors in Adolescents and Young Adults in a Hematology/Oncology Setting.
J Pediatr Psychol. 2014 Sep 14;
Authors: Ehrentraut JH, Kern KD, Long SA, An AQ, Faughnan LG, Anghelescu DL
OBJECTIVE: To describe the occurrence and psychosocial correlates of aberrant opioid-associated behavior (AOB) in...
Chronic myeloid leukemia in adolescents and young adults: patient characteristics, outcomes and review of the literature.
Acta Haematol. 2014;132(3-4):298-306
Authors: Pemmaraju N, Cortes J
Over the past two decades, many improvements have been made in the...
Thalassemia major and sickle cell disease in adolescents and young adults.
Acta Haematol. 2014;132(3-4):340-7
Authors: Yacobovich J, Tamary H
The increased longevity of patients with thalassemia and sickle cell disease (SCD) introduces new clinical challenges due...
Adolescents and Young Adults with Non-Hodgkin's Lymphoma: Slipping between the Cracks.
Acta Haematol. 2014;132(3-4):279-91
Authors: Wolach O, Ram R
Adolescents and young adults (AYAs) with cancer have inferior survival as compared to children. The reasons for...
Predictors of unmet needs and psychological distress in adolescent and young adult siblings of people diagnosed with cancer.
Psychooncology. 2014 Aug 17;
Authors: McDonald FE, Patterson P, White KJ, Butow P, Bell ML
PURPOSE: Predictors of psychological distress and unmet...
Impact of a Teen Weekend on the Social Support Needs of Adolescents With Cancer.
J Pediatr Oncol Nurs. 2014 Jul 10;
Authors: Stegenga K
Adolescents are particularly vulnerable to the psychosocial stressors of a cancer diagnosis because of the unique expectations of their developmental stage. Their developing autonomy and...
The relationship between posttraumatic stress and posttraumatic growth among adolescent and young adult (AYA) cancer patients.
Psychooncology. 2014 Jun 11;
Authors: Zebrack B, Kwak M, Salsman J, Cousino M, Meeske K, Aguilar C, Embry L, Block R, Hayes-Lattin B, Cole S
Overcoming Psychosocial and Developmental Barriers to Blood and Marrow Transplantation (BMT) in an Adolescent/Young Adult (AYA) Transgender Patient with Chronic Myelogenous Leukemia.
Pediatr Hematol Oncol. 2014 May 22;
Authors: Khazal S, Abdel-Azim H, Kapoor N, Mahadeo KM...
The reality of hospitalisation: Stories from family members of their hospital experience for adolescents and young adults living with and dying from cancer.
Contemp Nurse. 2014;46(2):150-60
Authors: Barling JA, Stevens JA, Davies KM
Abstract Background: Adolescents and Young Adults (AYAs) with cancer are being...
from patients, caregivers and medical professionals dealing with this disease and many other diseases