Adolescents and young adults (AYA) with cancer have often been described as a medically underserved population, falling through the gap between pediatric and adult oncology. As AYAs transition from childhood or adulthood the normal concerns they may have – development of body image, dating, separating from parents, career and education decisions – are compounded when they are faced with cancer. AYA cancer patients may face issues such as infertility, loss of employment/breaks in education due to treatment, increased dependence on parents, and other health concerns that may be exceptionally difficult for this group to cope with.
Source: Zebrack B, Hamilton R, Smith A. Psychosocial Outcomes and Service Use Among Young Adults With Cancer. Semin Oncol. 2009; 36:468-477.
Adolescent and Young Adult Patient Engagement and Participation in Survey-Based Research: A Report From the "Resilience in Adolescents and Young Adults With Cancer" Study.
Pediatr Blood Cancer. 2016 Apr;63(4):734-6
Authors: Rosenberg AR, Bona K, Wharton CM, Bradford M, Shaffer ML, Wolfe J, Baker KS...
Psychological morbidities in adolescent and young adult blood cancer patients during curative-intent therapy and early survivorship.
Cancer. 2016 Jan 7;
Authors: Muffly LS, Hlubocky FJ, Khan N, Wroblewski K, Breitenbach K, Gomez J, McNeer JL, Stock W,...
Providing Information About Late Effects During Routine Follow-Up Consultations Between Pediatric Oncologists and Adolescent Survivors: A Video-Based, Observational Study.
J Adolesc Young Adult Oncol. 2015;4(4):200-8
Authors: Mellblom AV, Korsvold L, Finset A, Loge J, Ruud E, Lie HC
PURPOSE: Information about late...
The Age Conundrum: A Scoping Review of Younger Age or Adolescent and Young Adult as a Risk Factor for Clinical Distress, Depression, or Anxiety in Cancer.
J Adolesc Young Adult Oncol. 2015 Dec;4(4):157-73
Authors: Lang MJ, David V, Giese-Davis J
This scoping review was conducted to understand the extent, range, and...
Needs and Lifestyle Challenges of Adolescents and Young Adults With Cancer: Summary of an Institute of Medicine and Livestrong Foundation Workshop.
Clin J Oncol Nurs. 2015 Dec 1;19(6):675-81
Authors: Daniel CL, Emmons KM, Fasciano K, Fuemmeler BF, Demark-Wahnefried W
"The AYA Director": A Synthesizing Concept to Understand Psychosocial Experiences of Adolescents and Young Adults With Cancer.
Cancer Nurs. 2015 Oct 22;
Authors: Belpame N, Kars MC, Beeckman D, Decoene E, Quaghebeur M, Van Hecke A, Verhaeghe S
A randomized controlled pilot trial of a Web-based resource to improve cancer knowledge in adolescent and young adult survivors of childhood cancer.
Psychooncology. 2016 Nov;25(11):1308-1316
Authors: Kunin-Batson A, Steele J, Mertens A, Neglia JP
OBJECTIVE: This study examined cancer knowledge in adolescent and young...
Health behaviors, quality of life, and psychosocial health among survivors of adolescent and young adult cancers.
J Cancer Surviv. 2015 Aug 7;
Authors: Warner EL, Nam GE, Zhang Y, McFadden M, Wright J, Spraker-Perlman H, Kinney AY, Oeffinger KC, Kirchhoff AC
Psychometric Properties of the Psychosocial Assessment Tool-General in Adolescents and Young Adults With Sickle Cell Disease.
J Pediatr Psychol. 2015 Aug 13;
Authors: Crosby LE, Joffe NE, Reynolds N, Peugh JL, Manegold E, Pai AL
OBJECTIVES : Adolescents and young adults (AYAs) with sickle cell disease (SCD) experience...
Depression in adolescents and young adults with cancer.
Dialogues Clin Neurosci. 2015 Jun;17(2):171-80
Authors: Park EM, Rosenstein DL
Psychosocial Interventions for Adolescents and Young Adults with Cancer.
Semin Oncol Nurs. 2015 Aug;31(3):242-50
Authors: Phillips CR, Davis LL
OBJECTIVES: To summarize and evaluate the studies published since 2007 on psychosocial...
Assessing the psychosocial needs and program preferences of adolescents and young adults with cancer.
Support Care Cancer. 2015 Jul 21;
Authors: Barakat LP, Galtieri LR, Szalda D, Schwartz LA
PURPOSE: Adolescents and young adults (AYA) are a developmentally...
from patients, caregivers and medical professionals dealing with this disease and many other diseases