Adolescents and young adults (AYA) with cancer have often been described as a medically underserved population, falling through the gap between pediatric and adult oncology. As AYAs transition from childhood or adulthood the normal concerns they may have – development of body image, dating, separating from parents, career and education decisions – are compounded when they are faced with cancer. AYA cancer patients may face issues such as infertility, loss of employment/breaks in education due to treatment, increased dependence on parents, and other health concerns that may be exceptionally difficult for this group to cope with.
Source: Zebrack B, Hamilton R, Smith A. Psychosocial Outcomes and Service Use Among Young Adults With Cancer. Semin Oncol. 2009; 36:468-477.
Psychological Distress and Posttraumatic Stress Symptoms in Adolescents and Young Adults with Cancer and Their Parents.
J Adolesc Young Adult Oncol. 2016 May 23;
Authors: McCarthy MC, McNeil R, Drew S, Dunt D, Kosola S, Orme L, Sawyer SM
PURPOSE: To investigate the prevalence and predictors of psychological distress in...
Unmet Needs for Psychosocial Care in Hematologic Malignancies and Hematopoietic Cell Transplant.
Curr Hematol Malig Rep. 2016 Apr 25;
Authors: Barata A, Wood WA, Choi SW, Jim HS
Individuals diagnosed with hematologic malignancies experience significant unmet...
Patterns in Clinical Trial Enrollment and Supportive Care Services Provision Among Adolescents and Young Adults Diagnosed with Having Cancer During the Period 2000-2004 in Western Australia.
J Adolesc Young Adult Oncol. 2016 May 2;
Authors: Shirazee N, Ives A, Collins J, Phillips M, Preen D
PURPOSE: Support services...
The Psychosocial Influences of Waiting Periods on Patients Undergoing Endoscopic Submucosal Dissection.
Gastroenterol Nurs. 2016 Mar 16;
Authors: Nagao N, Tsuchiya A, Ando S, Arita M, Toyonaga T, Miyawaki I
This study aimed to clarify psychosocial influences...
Screening for fatigue in adolescent and young adult pediatric brain tumor survivors: accuracy of a single-item screening measure.
Support Care Cancer. 2016 Mar 31;
Authors: Brand SR, Chordas C, Liptak C, Manley P, Recklitis C
PURPOSE: Cancer-related fatigue (CRF...
Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): a systematic review.
J Cancer Surviv. 2016 Feb 26;
Authors: Barnett M, McDonnell G, DeRosa A, Schuler T, Philip E, Peterson L, Touza K, Jhanwar S, Atkinson TM, Ford JS...
Fulfilling the Vision of Youth-Friendly Cancer Care: A Study Protocol.
J Adolesc Young Adult Oncol. 2016 Feb 26;
Authors: Sawyer SM, McCarthy MC, Dunt D, McNeil R, Thompson K, Orme L, Drew SE
PURPOSE: There is growing evidence about the extent that cancer in adolescents and young adults (AYAs) can interrupt normal...
A comparison of heterosexual and LGBTQ cancer survivors' outlooks on relationships, family building, possible infertility, and patient-doctor fertility risk communication.
J Cancer Surviv. 2016 Feb 18;
Authors: M Russell A, Galvin KM, Harper MM, Clayman ML
Fertility Issues in Adolescent and Young Adult Cancer Survivors.
J Adolesc Young Adult Oncol. 2015 Nov 18;
Authors: Benedict C, Shuk E, Ford JS
PURPOSE: Many adolescent and young adult (AYA) cancer survivors place great importance on fertility. This study explored AYAs' discussions of fertility in the context of...
The Doctor-Patient Relationship in the Adolescent Cancer Setting: A Developmentally Focused Literature Review.
J Adolesc Young Adult Oncol. 2015 Sep;4(3):108-17
Authors: Siembida EJ, Bellizzi KM
Several national reports and many individuals in the clinical oncology community have defined the adolescent and young adult (...
Weight-related correlates of psychological dysregulation in adolescent and young adult (AYA) females with severe obesity.
Appetite. 2016 Jan 14;99:211-218
Authors: Gowey MA, Reiter-Purtill J, Becnel J, Peugh J, Mitchell JE, Zeller MH, TeenView Study Group
Providing Information About Late Effects During Routine Follow-Up Consultations Between Pediatric Oncologists and Adolescent Survivors: A Video-Based, Observational Study.
J Adolesc Young Adult Oncol. 2015;4(4):200-8
Authors: Mellblom AV, Korsvold L, Finset A, Loge J, Ruud E, Lie HC
PURPOSE: Information about late...
from patients, caregivers and medical professionals dealing with this disease and many other diseases