Adolescents and young adults (AYA) with cancer have often been described as a medically underserved population, falling through the gap between pediatric and adult oncology. As AYAs transition from childhood or adulthood the normal concerns they may have – development of body image, dating, separating from parents, career and education decisions – are compounded when they are faced with cancer. AYA cancer patients may face issues such as infertility, loss of employment/breaks in education due to treatment, increased dependence on parents, and other health concerns that may be exceptionally difficult for this group to cope with.
Source: Zebrack B, Hamilton R, Smith A. Psychosocial Outcomes and Service Use Among Young Adults With Cancer. Semin Oncol. 2009; 36:468-477.
Awareness and advocacy for adolescents and young adults with cancer.
Cancer. 2011 May 15;117(10 Suppl):2311-5
Authors: McGoldrick D, Gordon P, Whiteson M, Adams H, Rogers P, Sutcliffe S
Increasing the awareness of the clinical and psychosocial needs that are particular to adolescents and young adults (AYA) was a top priority, as was strengthening advocacy efforts to empower and support this group. To date, AYA advocates had some success in generating public awareness and building a solid clinical...
Active therapy and models of care for adolescents and young adults with cancer.
Cancer. 2011 May 15;117(10 Suppl):2316-22
Authors: Ramphal R, Meyer R, Schacter B, Rogers P, Pinkerton R
The reduction in the cancer mortality rate in adolescents and young adults (AYA) with cancer has lagged behind the reduction noted in children and older adults. Studies investigating reasons for this are limited but causes appear to be multifactorial. Host factors such as developmental stage, compliance, and...
Palliative care in adolescents and young adults with cancer.
Cancer. 2011 May 15;117(10 Suppl):2323-8
Authors: Pritchard S, Cuvelier G, Harlos M, Barr R
Adolescents and young adults (AYA) with advanced or terminal cancer have distinctive medical and psychosocial needs that may not have been adequately provided by either pediatric or adult palliative care services. A discussion group, as part of a larger workshop on AYA with cancer, was held in Toronto on March 11-13, 2010;117:-. Recommendations...
from patients, caregivers and medical professionals dealing with this disease and many other diseases