Adolescents and young adults (AYA) with cancer have often been described as a medically underserved population, falling through the gap between pediatric and adult oncology. As AYAs transition from childhood or adulthood the normal concerns they may have – development of body image, dating, separating from parents, career and education decisions – are compounded when they are faced with cancer. AYA cancer patients may face issues such as infertility, loss of employment/breaks in education due to treatment, increased dependence on parents, and other health concerns that may be exceptionally difficult for this group to cope with.
Source: Zebrack B, Hamilton R, Smith A. Psychosocial Outcomes and Service Use Among Young Adults With Cancer. Semin Oncol. 2009; 36:468-477.
Life situation and psychosocial care of adolescent and young adult (AYA) cancer patients - study protocol of a 12-month prospective longitudinal study.
BMC Cancer. 2017 Jan 28;17(1):82
Authors: Leuteritz K, Friedrich M, Nowe E, Sender A, Stöbel-Richter Y, Geue K
[Characteristics of Adolescent and Young Adult Cancer].
Gan To Kagaku Ryoho. 2017 Jan;44(1):7-11
Authors: Horibe K
In adolescent and young adult(AYA)population, cancer is the leading cause of death due to illness with...
Adolescents and Young Adults: Addressing Needs and Optimizing Care With a Clinical Nurse Specialist.
Clin J Oncol Nurs. 2017 02 01;21(1):123-126
Authors: Mitchell L, Stuart-McEwan T, Panet H, Gupta A
Adolescents and young adults (AYAs) with...
Adolescent and young adult (AYA) lymphoma survivors report lower health-related quality of life compared to a normative population: results from the PROFILES registry.
Acta Oncol. 2017 Jan 12;:1-7
Authors: Husson O, Prins JB, Kaal SE, Oerlemans S, Stevens WB, Zebrack B, van der Graaf WT, van de Poll-Franse LV
The Benefits and Burdens of Cancer: A Prospective Longitudinal Cohort Study of Adolescents and Young Adults.
J Palliat Med. 2017 Jan 04;:
Authors: Straehla JP, Barton KS, Yi-Frazier JP, Wharton C, Baker KS, Bona K, Wolfe J, Rosenberg AR
BACKGROUND: Adolescents and early young adults (AYAs) with cancer are at high risk...
Building a National Framework for Adolescent and Young Adult Hematology and Oncology and Transition from Pediatric to Adult Care: Report of the Inaugural Meeting of the "AjET" Working Group of the German Society for Pediatric Oncology and Hematology.
J Adolesc Young Adult Oncol. 2016 Dec 16;
Authors: Escherich G, Bielack S, Maier S, Braungart R,...
Graft-Versus-Host Disease in Adolescents and Young Adults (15-24 Years Old) After Allogeneic Hematopoietic Stem Cell Transplantation for Acute Leukemia in First Complete Remission.
J Adolesc Young Adult Oncol. 2016 Dec 16;
Authors: Vignon M, Andreoli A, Dhédin N, Lengliné E, Masson E, Robin M, Granier C, Larghero J, Schlageter MH, Peffault de Latour R,...
[Which approach of therapeutic education (TE) for adolescents and young adults with cancer? Experience from the TE working group of "Go-AJA"].
Bull Cancer. 2016 Dec;103(12):966-978
Authors: Corradini N, Dagorne L, Retailleau M, Rédini F, Sudour-Bonnange H, Gofti-Laroche L, Le...
Correlates of self-efficacy for disease management in adolescent/young adult cancer survivors: A systematic review.
Health Psychol. 2016 Dec 08;
Authors: Herts KL, Khaled MM, Stanton AL
OBJECTIVE: The primary objective of this review was to summarize the literature regarding factors associated with self-efficacy for...
Non-Hodgkin lymphoma across the pediatric and adolescent and young adult age spectrum.
Hematology Am Soc Hematol Educ Program. 2016 Dec 02;2016(1):589-597
Authors: Sandlund JT, Martin MG
The non-Hodgkin lymphomas (NHLs) occurring...
Lost and stranded: the experience of younger adults with advanced cancer.
Support Care Cancer. 2016 Sep 27;
Authors: Knox MK, Hales S, Nissim R, Jung J, Lo C, Zimmermann C, Rodin G
PURPOSE: There has been increased awareness recently of the unique medical and...
Health Literacy in Adolescents and Young Adults: Perspectives from Australian Cancer Survivors.
J Adolesc Young Adult Oncol. 2016 Sep 22;
Authors: Lin M, Sansom-Daly UM, Psychol M, Wakefield CE, McGill BC, Psychol M, Cohn RJ
PURPOSE: Health literacy is a critical determinant of health and an emerging public health...
from patients, caregivers and medical professionals dealing with this disease and many other diseases