Due to the unique psychosocial issues that affect the adolescent and young adult (AYA) cancer population there exists a special subgroup of palliative care. Palliative care is used to provide pain and symptom control, so the ability to win the trust and respect of the AYA population is especially crucial yet extremely challenging. AYA treatment compliance is dependent on this confidence created between patient and provider as AYAs claim their independence while transitioning into adulthood. Cancer care goals may be objectively assessed through the use of a palliative medicine consultant particularly in progression from curative intent to symptom management.
Source: Wein S, Pery S, Zer A. Role of Palliative Care in Adolescent and Young Adult Oncology. J Clin Oncol. 2010; 28:4819-4824.
End of life care in adolescents and young adults with cancer: Experience of the adolescent unit of the Institut Gustave Roussy.
Eur J Cancer. 2011 Nov 2;
Authors: Cohen-Gogo S, Marioni G, Laurent S, Gaspar N, Semeraro M, Gabolde M, Dufour C, Valteau-Couanet D, Brugières L
Abstract
BACKGROUND: Cancer is the third leading cause of death in adolescents and young adults (AYA). Little is known, however, about how end-of-life unfolds for those who die of progressive disease. In order to...
Outcomes and metrics: measuring the impact of a comprehensive adolescent and young adult cancer program.
Cancer. 2011 May 15;117(10 Suppl):2342-50
Authors: Greenberg M, Klassen A, Gafni A, McBride ML, Albritton K
Against a background of poorly coordinated provision of holistic care to the adolescent and young adult (AYA) cancer population, the Canadian National Task Force on Adolescent and Young Adult Oncology, which is supported by the Canadian Partnership Against Cancer and the C17 network,...
Providing developmentally appropriate psychosocial care to adolescent and young adult cancer survivors.
Cancer. 2011 May 15;117(10 Suppl):2329-34
Authors: D'Agostino NM, Penney A, Zebrack B
To deliver developmentally appropriate psychosocial care, the key developmental tasks facing adolescents and young adults (AYA) need to be taken into consideration. These include establishing autonomy from parents; a personal set of values and identity; strong peer relationships, including intimate and sexual...
Palliative care in adolescents and young adults with cancer.
Cancer. 2011 May 15;117(10 Suppl):2323-8
Authors: Pritchard S, Cuvelier G, Harlos M, Barr R
Adolescents and young adults (AYA) with advanced or terminal cancer have distinctive medical and psychosocial needs that may not have been adequately provided by either pediatric or adult palliative care services. A discussion group, as part of a larger workshop on AYA with cancer, was held in Toronto on March 11-13, 2010;117:-. Recommendations...
Role of palliative care in adolescent and young adult oncology.
J Clin Oncol. 2010 Nov 10;28(32):4819-24
Authors: Wein S, Pery S, Zer A
Adolescents and young adults (AYAs) with cancer are a heterogeneous group. Nevertheless, there are sufficient unifying characteristics to form a distinct clinical entity. Management of this special group requires a broad-based interdisciplinary clinical team, which should include palliative care (PC), psychology, social work, oncology, and nursing representatives....
Can't do this no more.
Patient Educ Couns. 2008 Jul;72(1):3-4
Authors: Jones K
PMID: 18436415 [PubMed - indexed for MEDLINE]
from patients, caregivers and medical professionals dealing with this disease and many other diseases